Jackson Stormes:A Difficult and Amazing Journey 

Living with Dravet Syndrome and all the complications

In the Press

Jackson Stormes in the News.

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Hope Township mother, son to urge Gov. Christie to sign kids' access to medical marijuana bill

Posted by [email protected] on July 30, 2013 at 3:15 PM

Hope Township mother, son to urge Gov. Christie to sign kids' access to medical marijuana bill

 


By Andrew George | The Express-Times

on July 27, 2013 at 6:00 PM, updated July 27, 2013 at 6:03 PM

 

 

 


 

Last Tuesday night, 14-year-old Jackson Stormes suffered through 12 seizures in a Bergen C...

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December 2011-- STP Stiripentol Medication

Posted by [email protected] on January 13, 2012 at 6:25 PM

 

Hope Township boy with severe epilepsy experiences change on new medication

Published: Monday, December 26, 2011, 4:49 AM

By Phillip Molnar | The Express-Times Express-Times Photo | MATT SMITH

Stormes spends every available moment with 12-year-old Jackson, even sleeping in his room to reduce the risk of him dying in his sleep. But that doesn't mean they've had a substanti...

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September 2008-Make A Wish

Posted by [email protected] on May 17, 2011 at 5:35 PM
BLAIRSTOWN -- Tears well up in the eyes of Jen Stormes as she talks about the progress her son, Jackson, has made since having major brain surgery in April.Jackson, age 9, was diagnosed with severe brain-related complications just four-and-a-half months after he was born. As a result, Jackson has had to contend with epilepsy and multiple disabilities. Something no mother wants to hear. But the entire process has made Stormes strong. And Jackson's most recent progress is something Stormes is more... Read Full Post »

July 2005-VNS Implant Follow Up

Posted by [email protected] on May 17, 2011 at 5:35 PM

Severely epileptic child finds some relief By Sara Cardine

News-Sentinel Staff Writer

Last updated: Saturday, Jul 02, 2005- 06:04:18 am PDT

A renegade morning breeze rustles leaves in the trees around the backyard ofa rural Lodihome. Among its invisible furls darts a young, tow-headed boy named JacksonStormes. His gaze is set on the swing set before him.

"Go push Jack," he calls to his mother, Jennie.

When she asks where, the boy p...

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January 2005-VNS Surgery at UC Davis

Posted by [email protected] on May 17, 2011 at 5:30 PM Comments comments (0)

Sara Cardine followed me and my mom through the medical center and surgery.

Thank you Sara for all your support and understanding.

Implanted device gives new hope to Lodi boy with severe epilepsy

By SaraCardine

News-Sentinel Staff Writer

Last updated: Saturday, Jan 29, 2005 -07:56:11 am PST

In the waiting room of the UCDavis Medical Center in Sacramento,Jennie Stormes puts her faith in a surgical procedure that could mean a n...

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January 2004-Riding Out the Stormes

Posted by [email protected] on May 17, 2011 at 5:25 PM

This article from the Lodi News Sentinal waswritten by Alex Lazo.  He received the 2004 Journalist of the Year Award from the Epilepsy Foundation of America.

Thank you Alex for sharing with others the reality of our world.

Riding Out the Stormes

Couple hopes for normal life for their epileptic son

By Alejandro Lazo

News-Sentinel Staff Writer

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