Jackson Stormes:A Difficult and Amazing Journey 

Living with Dravet Syndrome and all the complications

Ketogenic Diet 

In General 

The ketogenic diet is a medical option to treat and control epilepsy (often called medically refractory) which does not typically respond well to traditional medications, treatments, surgical interventions or other methods.  The diet goes back to biblical times when worshipers were instructed to fast and pray.  The seizures would disappear during the fast and return with the prayer.  There many wonderful resources and uses for the ketogenic diet in the modern world to assist with seizure control and even to improve cognition with ALZ patients.  The diet is a strict, calorie controlled diet which must be medically supervised and monitored for safety and efficacy.  There are multiple approaches to the ketogenic diet and all are effective and work.

 

In The Movies 

In 1997 there was a TV movie which featured a little boy and his family struggling with epilepsy.  First Do No Harm featuring Meryl Strep is a great movie to understand the daily life, struggles, unpredictability and frustration with epilepsy and options available to treat children.  As seen in this movie based on a real-life family, the idea of seizure control is possible and attainable.

 

Movie on YouTube -- First Do No Harm with Meryl Strep (10 Parts)

 

 

Resources 

Ann Bee's Naturals (Ketogenic Friendly Products) http://www.annbeesnaturals.com/Ketogenic-Diet.html 

PubMed Article discussing the option of the Ketogenic Diet  http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1176378/ 

Charlie Foundation http://www.charliefoundation.org/  

Ketogenic diet also benefits Dravet syndrome patients receiving stitipentol: a prospective pilot study 

 

Medically Following with Trained Doctors 

John Hopkins is the most widely recognized and known Ketogenic Diet researchers and providers of the diet.  

Children's Hospital of Philadelphia, PA

Lucille Packard Children's Hosptial at Stanford University in Palo Alto, CA

University Hospital at UMDNJ in Newark, NJ

Northeast Regional Epilepsy Group in Hackensack, NJ

Neuroscience Center at Overlook/Atlantic Health in Summit, NJ 

 

 

 

Ketogenic Diet Calculators 

KetoCalculator sponsored by KetoCal and Nutricia

PubMed Article:  Ketocalulator: a web-based calculator for the ketogenic diet 

Stanford Excel Keto Calculator

My Keto Planner 

 

 

 

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