Jackson Stormes:A Difficult and Amazing Journey 

Living with Dravet Syndrome and all the complications

Lynne


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Joined Apr 10 2013
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Jackson Stormes A Difficult & Amazing Journey

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  • Lynne is now a member Apr 10, 2013 
About Me

My name is Lynne and I have a son Gerard who suffers from severe medical and surgical refractory epilepsy.  We have tried surgery several times, many different medications and countless other forms of treatment.  He has had allergic reactions to quite a few meds., and we have not found any that have lessened the number of seizures he has each day.  I am in total support of research and awareness for epilepsy and for hopefully finding the answers that are so desperately needed.

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