Jackson Stormes:A Difficult and Amazing Journey 

Living with Dravet Syndrome and all the complications

Niclas vd Walt


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Joined May 1 2012
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FEMALE
Ermelo Mpumalanga South Africa
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Jackson Stormes A Difficult & Amazing Journey

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Celia van der Walt mom of 8 year old Niclas been diagnose with SMEI at one year old, struggling to get seizures myclonic jerks under control.

We have been on several medicine no good outcome.

We are going to try valporate and stiriptenol with ospolot from 30 April 2012

Kind regards

Celia van der Walt

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